Toolkit on Patient Partner Engagement in Research


Toolkit on Patient Partner Engagement in Research


The Toolkit on Patient Partner Engagement in Research (TOPPER) is a comprehensive set of orientation materials that were created for the patient partners—patients, family members, and caregivers—who advise researchers throughout a research project. Although these materials were originally developed for patient partners of youth and teens with type 1 diabetes, they can be adapted for a variety of types of patient partners.

The toolkit includes the following resources:

  • A session agenda
  • A detailed manual for two facilitators to use during the orientation
  • 20 supplementary worksheets, exercises, forms, and examples

Free registration is required to access this toolkit.


University of Wisconsin–Madison; American Family Children’s Hospital

Funding Sources:

Patient-Centered Outcomes Research Institute; National Institute of Nursing Research; National Center for Advancing Translational Sciences


Release Date: 2015
Date Verified: 02/12/15
Original Summary: February 2015

Disclaimer: The inclusion of a tool in the Innovations Exchange does not constitute or imply an endorsement by the U.S. Department of Health and Human Services, the Agency for Healthcare Research and Quality or Westat of the tool or of the submitter or developer of the tool. Read more.

This website is certified by Health On the Net Foundation. Click to verify. This site complies with the HONcode standard for trustworthy health information: verify here.