The purpose of the National Healthcare Disparities Report (NHDR) is to identify the differences or gaps through which some populations receive poor or worse care than others and to track how these gaps are changing over time. This report measures trends in effectiveness of care, patient safety, timeliness of care, patient centeredness, and efficiency of care.
The 2013 report presents expanded analyses on quality of care and access to care for people with disabilities, who represent 20...
The key function of the National Healthcare Quality Report (NHQR) is to summarize the state of health care quality and access for the Nation and report on progress and opportunities for improving health care quality, as mandated by the U.S. Congress. This report measures trends in effectiveness of care, patient safety, timeliness of care, patient centeredness, and efficiency of care.
The theme of the 2013 report highlights one of AHRQ's priority populations, individuals with...
This series of toolkits offers tips and tools that families and providers could use to support quality improvement within systems of care for children and youth with special health care needs.
The following toolkits are available:
- Toolkits for providers:
- Providers serving children with epilepsy
- Providers serving children with hearing loss
- Toolkits for families:
- General tools and tips for families of children and youth with...
These research summaries, for consumers, clinicians, and policymakers, provide information about the benefits and risks of different treatments for different health conditions. The summaries are based on comparative effectiveness reviews that cover numerous health topics. The summaries are not clinical recommendations or guidelines and should not be interpreted as such.
The covered health topics include:
- Breathing conditions
The Picture Sticker Book was developed to help people in developmental centers tell helpers and advisers what they want for their life in the community, and while still living at a developmental center. The book is a companion to the guides “Making My Own Choices” and “Satisfaction Guide.” It is designed to help people with developmental disabilities participate in decisions and communicate about how and where they spend their time and with whom they spend it. The book contains pictures...
The Health Care Coordination Toolkit is designed to assist individuals, guardians, and teams in the proper coordination of health care for adults with developmental disabilities. It includes forms to guide the information that should be tracked for effective care coordination.
The intent of the toolkit is to assure that individuals receive timely medical followup, testing, and monitoring for adequate health care delivery.
The materials are organized into the following...
The Care Notebook is a tool for families of children with special health care needs to organize information about their child’s chronic health condition. The notebook contains sections that can be filled out as a reference about the child’s health and treatments. It is a transportable tool that can be taken and shared with doctors, other health care professionals, or school or child care personnel.
Parents can use the Care Notebook for the following:
This Web site includes a variety of tools for families, youth, providers, insurers, communities, and States working to provide medical homes for children with special needs. Many materials are available for immediate download through this site. Users are encouraged to adapt these tools to best meet the needs of their child, patient, or client.
The Adolescent Health Transition Project is designed to help smooth the transition from pediatric to adult health care for adolescents with special health care needs. This site is a resource for information, materials, and links for people interested in health transition issues.
Site contents include:
- Information for:
- Teens and young adults
- Diabetes-specific information
- Parents and families
- Diabetes-specific information ...
- Teens and young adults
The Centers for Disease Control and Prevention’s “Learn the Signs. Act Early” campaign provides a variety of tools and materials to help parents recognize the signs of developmental disabilities such as autism. The campaign helps parents measure their children’s developmental progress by monitoring how they play, learn, speak, and act. The site also includes useful campaign materials for health care providers, child care providers, and campaign partners.
The site includes the following...